Timeline

August 1, 2014

• Complaining about her leg hurting
• Took her to the doctor
• X-ray showed no breaks
• Diagnosed with a sprain

August 15, 2014

• First day of Kindergarten
• First notice petechiae covering her stomach, back and legs

August 17, 2014

• Develop a fever
• Take her to the E.R.
• Blood work shows very low platelets, normal white count (but elevated lymphocytes) and slightly anemic
• Transfer to Stormont-Vail in Topeka
• Meet the Pediatric Hematology Oncologist (Dr. T.) - she suspects leukemia
• Received platelet transfusion

August 18, 2014

• Sedated bone marrow biopsy
• Dr. T. reviews slides and narrows down to ALL and AML
• Marrow sent to Nebraska for testing

August 19, 2014

• Receive platelet transfusion
• Procedure for portocath placement
• Chemo begins (Day 1) with a lumbar puncture and an infusion (through port), Vincristine
• Official diagnosis of Acute Lymphoblasitc Leukemia, ALL, received

August 22, 2014

• Second infusion of chemo, PEG Asparaginase
• Received transfusion of leuko-reduced irradiated red blood cells

August 24, 2014

• Receive platelet transfusion

August 25, 2014

• Sedated for lumbar puncture for chemo injection, Methotrexate
• Another chemo infusion, Vincristine

August 27, 2014

• Released from the hospital 

September 2, 2014

• Doctor appointment with chemo infusion, Vincristine
• Dehydrated due to mouth sores given IV fluids

September 3-5, 2014

• Everyday to the local hospital for IV fluids

September 8, 2014

• Doctor Appointment with chemo infusion, Vincristine

September 11, 2014

• Local lab to test her fibrinogen level, which was very low
• Trip to Topeka for FFP (fresh frozen plasma) transfusion

September 15, 2014

• Second bone marrow biopsy
• Lumbar puncture for chemo injection, Methotrexate
• Chemo infusion, Vincristine and PEG
• Has been having bowel problems, tested positive for C. Diff

September 19, 2014

• Finally received results from the biopsy: remission!

September 22, 2014

• Lumbar puncture for chemo injection, Methotrexate

September 24, 2014

• Developed a fever
• Call the doctor and head to the hospital

September 26, 2014

• She was given fluids and tested for just about every virus they could think of, plus blood cultures and everything came back negative. 
• After an exhausting two days, where her fever kind of roller coastered but finally came down, we were released

September 29, 2014

• Lumbar puncture for chemo injection, Methotrexate
• With continued bowel issues she was put back on the medication for C. Diff

October 2, 2014

• Local lab to test her fibrinogen level, still low

October 3, 2014

• Trip to Topeka for FFP transfusion

October 6, 2014

• Doctor visit with chemo infusion, PEG

October 13, 2014

• Doctor visit with chemo infusion, Vincristine and Methotrexate

October 23, 2014

• Doctor visit with chemo infusion, Vincristine and Methotrexate
• Fibrinogen level checked, high enough that she doesn't need FFP

October 27, 2014

• Doctor visit with chemo infusion, PEG
• Hemoglobin low
• Head to the hospital (across the street) for a blood transfusion

November 3, 2014

• Doctor visit with chemo infusion, Vincristine and Methotrexate